I know, I know. I took a bit of a hiatus from blogging. Sorry about that. I was busy living my life. Finding joy in each day and making memories with my near and dear. So, I figure you might cut me some slack in the lack of blogging department. But I’m back baby!
I want everyone to know how incredibly thankful I feel. For your prayers, your warm thoughts, your texts (that I don’t always reply to), meals you lovingly prepare, the walks, the coffee dates, lunch dates, coming over to visit, just getting me out of the house, etc.I remember very clearly how busy lives can be and I appreciate everything you all do to remind me that I’m supported. I am eternally grateful.
So much has happened in this past year. I have gone on some fun trips and excursions. Parksville was visited twice with my dear friend Leanne, we shared so many laughs.
September had me floating down the Cowichan river with some dear friends and family. Dolce looked absolutely adorable in her life jacket sitting atop by tight abs. She kept sliding down the rungs of my six pack like the old school washing boards. (lol)
Dino was awarded a European Riverboat cruise for his exemplary service for the past year. In October We visited Hungary, Austria and Germany. (There were only 160 guests) on board an 8 day cruise, along the Danube river. The staff knew us by name and our butler (that’s right, I just said butler) was Imre. After talking with Imre about ALS a bit I found by lunchtime the staff were anticipating my needs in such a sweet and kind way that it melted my heart. We met some beautiful people on the cruise and feel like we have been lifelong friends with them. This past January we spent 8 days in Maui and we were upgraded to a Villa. It was so lovely to have my mom in law Raffe with us to make our holiday that much more special. Dino helped me into the ocean to ensure I wasn't swept away as my balance at the best of times was sketchy. On our flight home, I knew that this was my last big trip; my body was working very hard to keep up. My new pace was slow and not so steady.
August 20, 2017
I have been getting around town in a power wheelchair that the ALS Society of BC loaned me. They have also loaned me a quad cane which I use inside, an electric hospital bed, adjustable bedside table, raised toilet seat and a portable ramp. Oh, also an electric recliner. Dino and I had our small bathroom on the main floor reno'd. It is now a gorgeous wheelchair accessible shower and sink bathroom. I love it!
I am savouring my independence as the mobility on my left side, which just last summer was my strong side, is dwindling. I have come to realize that crunch time has arrived and I'd better muster up my patience and courage for the next leg of this journey.
Thank-you to all of my friends, family and all the lovely souls I meet every day. What a beautiful life I have❤❤❤
